Research Statement

Kimberly Kaphingst, ScD, is a health communication researcher. She is a Professor in the Department of Communication and the Director of Cancer Communication Research at the Huntsman Cancer Institute (HCI) at the University of Utah. She is also a member of HCI's Cancer Control and Population Sciences Program and the Consortium for Families and Health Research at the University of Utah. Dr. Kaphingst's research interests are in health literacy, cancer communication, and the communication of genetic and genomic information. She uses both quantitative and qualitative methodologies in her research. One of her major interests is in patients' responses to genetic test results. In one study, she led an analysis of participants' recall and comprehension, affective responses, and information seeking and communication with providers following receipt of genetic susceptibility feedback. A second major area of interest is in patient preferences for return of cancer genetic information. Dr. Kaphingst was the Principal Investigator on a study (R01CA168608) to examine preferences for return of genome sequencing results among young breast cancer patients. A third area of interest is in family communication of cancer genetic test results. She is also co-leading studies to examine educational needs to support family communication and cascade genetic testing among families with hereditary cancer syndromes. Dr. Kaphingst is a Principal Investigator for study funded by the National Cancer Institute's Cancer Moonshot Program (U01CA232826), which is comparing approaches for delivering genetic counseling and testing for hereditary cancer among primary care patients.   

Research Keywords

  • Floriculture

Presentations

  • Improving clinical communication about genetics and genomics when patients have less than adequate literacy, Invited workshop, American Society of Human Genetics annual meeting, San Diego, CA. , Presented, 2018.
  • Informing the translation of genetic and genomic technologies with communication research, Social and Behavioral Research Branch, National Human Genome Research Institute, Bethesda, MD. , Presented, 2018.
  • Behavioral and communication perspectives on precision medicine: Translating findings to motivate change through intervention. American Society of Preventive Oncology annual meeting, New York, NY. , Presented, 2018.
  • Can primary and secondary prevention be improved through precision medicine: evidence on patient responses? American Society of Preventive Oncology annual meeting, New York, NY. , Presented, 2018.
  • Communication of genetic information to cancer patients. Grand Rounds, Saint Alphonsus Regional Medical Center, Boise, ID, May 12, 2017. , Presented, 2017.
  • Communication issues in recruitment of individuals from racial and ethnic minority groups to a precision medicine cohort. Frontiers in Precision Medicine – Exploring Science and Policy Boundaries, University of Utah, Salt Lake City, UT, December 4, 2015. , Presented, 2015.
  • What do patients really want to know? Communicating genetics, sequencing and beyond. Translating Cancer Epidemiology: From Cells to Clinic and Population. Huntsman Cancer Institute, Salt Lake City, UT, October 25, 2015. , Presented, 2015.
  • Family communication of genetic test results. Utah Cancer Genomics Project, Utah Department of Health and Huntsman Cancer Institute, Salt Lake City, UT, June 20, 2015. , Presented, 2015.
  • Chavez-Yenter D, Ginsburg O, Kaphingst KA. Investigating patient interactions with an automated conversational agent delivering pre-test genetics education. International Conference on Communication in Healthcare, virtual, October 2021. , Presented, 2021.
  • Kaphingst KA, Scherr CL, Peterson E, Elrick A, Clayton M. Genetic communication in the era of precision medicine: challenges and opportunities for health communication scholars. Panel at the National Communication Association annual meeting, Salt Lake City, UT. , Presented, 2018.
  • Kaphingst KA. Addressing health literacy and numeracy in cancer-related genetic communication studies. International Conference on Communication in Healthcare, Porto, Portugal. , Presented, 2018.
  • Hong SJ, Chou W-Y, Peterson E, Zhao J, Kaphingst KA. Uncertainty in the process of communicating cancer-related genetic and genomic information with patients and the public: results from a scoping review. Kentucky Conference on Health Communication. , Presented, 2018.
  • Banerjee SC, Zielaskowski K, White KAM, Rodriguez VM, Robers E, Guest DD, Sussman A, Talamantes Y, Schwartz M, Bigney J, Hunley K, Buller D, Kaphingst KA, Berwick M, Hay JL. Let’s talk about skin cancer: Examining association between family communication about skin cancer, perceived risk, and sun protection behaviors. Society of Behavioral Medicine annual meeting, New Orleans, LA. , Presented, 2018.
  • Kaphingst KA, Chou W-Y, Peterson E, Zhao J. Conceptual and measurement issues in defining genomic literacy. Society of Behavioral Medicine annual meeting, New Orleans, LA. , Presented, 2018.
  • Wu YP, Nagelhout ES, Aspinwall LG, Boucher KM, Parsons B, Kohlmann W, Kaphingst KA, Lensink R, Homburger S, Perkins RD, Grossman D, Harding G, Leachman SA. A risk communication and prevention intervention for children at risk for melanoma and their families: Acceptability and preliminary effects on knowledge and sun protection behaviors. Society of Behavioral Medicine annual meeting, New Orleans, LA. , Presented, 2018.
  • Elrick A, Koptiuch C, Wu Y, Kohlmann W, Kaphingst KA. State of the evidence: family communication interventions of genetic information. Society of Behavioral Medicine annual meeting, New Orleans, LA. , Presented, 2018.
  • Elrick A, Kohlmann W, Brown T, Espinel W, Kaphingst KA. Family communication of multi-gene panels: Development of study questionnaires. 2018 NHGRI Research Training and Career Development Annual Meeting, Los Angeles, CA. , Presented, 2018.
  • Canary H, Elrick A, Pokharel M, Clayton M, Kaphingst K. Family health history tools as communication resources: Perspectives from Caucasian, Hispanic, and Pacific Islander families. Western States Communication Association meeting, Santa Clara, CA. , Presented, 2018.
  • Wu YP, Aspinwall LG, Nagelhout E, Kohlmann W, Kaphingst K, Grossman D, Cassidy P, Leachman S. Interdisciplinary research collaboration to communicate genetic risk and melanoma preventive behaviors to high-risk children. Society of Pediatric Psychology, Atlanta, GA, April 2016. , Presented, 2016.
  • Kaphingst KA, Ivanovich J, Lyons S, Biesecker BB, Goodman MS. What factors affect interest in receiving genome sequencing results among young breast cancer patients? International Conference on Communication in Healthcare, New Orleans, LA, October 28, 2015. , Presented, 2015.
  • Kepka D, Ding Q, Pappas L, Boucher K, Akerley W, Fowler B, Wu Y, Kaphingst K, Kirchhoff A. High radon and higher incidence of lung cancer in nonmetropolitan areas. Abstract presentation at the Huntsman Cancer Institute conference, Translating Cancer Epidemiology: From cells to clinic to population, Salt Lake City, UT, October 25, 2015. , Presented, 2015.

Research Groups

  • Manusheela Pokharel, . 2018 - 2018.

Publications

  • Seo (date unknown). Seo J, Goodman MS, Politi M, Blanchard M, Kaphingst KA. Effect of health literacy on decision-making preferences among medically underserved patients. Medical Decision Making, in press. Accepted, .
  • Ratcliff CL, Wong B (date unknown). The Impact of Communicating Uncertainty on Public Responses to Precision Medicine Research. Annals of behavioral medicine : a publication of the Society of Behavioral Medicine. Vol. 55, 1048-1061. Accepted, .
  • Madden T, Cortez S, Kuzemchak M, Kaphingst KA, Politi MC (date unknown). Accuracy of information about the intrauterine device on the Internet. American journal of obstetrics and gynecology. Accepted, .
  • McQueen A (date unknown). McQueen A, Kreuter MW, Boyum S, Thompson VS, Caburnay C, Waters EA, Kaphingst KA, Rath S, Fu Q. Reactions to FDA-proposed graphic warning labels affixed to US smokers' cigarette packs. Nicotine & Tobacco Research 2015; 17(7):784-795. Accepted, .
  • Gilbert KL, Elder K, Lyons S, Kaphingst K, Blanchard M, Goodman M (date unknown). Racial Composition Over the Life Course: Examining Separate and Unequal Environments and the Risk for Heart Disease for African American Men. Ethnicity & disease. Vol. 25, 295-304. Accepted, .
  • Griffey RT (date unknown). Griffey RT, Carpenter CR, Gross M, Kinsella Y, Goodman MS, McGowan LD, Kaphingst KA. Impact of teach-back on comprehension of discharge instructions and satisfaction among emergency department patients with limited health literacy: a randomized, controlled study. Journal of Communication in Healthcare 2015; 8(1):10-21. Accepted, .
  • Chavez-Yenter D, Vagher J, Clayton MF (date unknown). "Being proactive, not reactive": exploring perceptions of genetic testing among White, Latinx, and Pacific Islander Populations. Journal of community genetics. Vol. 12, 617-630. Accepted, .
  • White KM (date unknown). MC1R variation in a New Mexico population. Cancer Epidemiology, Biomarkers & Prevention. Vol. 28, 1845-1852. Accepted, .
  • Hong SJ (date unknown). Factors affecting breast cancer patients' need for genetic risk information: from information insufficiency to information need. Journal of Genetic Counseling. Vol. 28, 543-557. Accepted, .
  • Petersen J (date unknown). Patterns of family communication and preferred resources for sharing information among families with Lynch syndrome diagnosis. Patient Education and Counseling. Vol. 101, 2011-2017. Accepted, .
  • Waters EA (date unknown). Examining the interrelations among objective and subjective health literacy and numeracy and their associations with health knowledge. Journal of General Internal Medicine. Vol. 33(11), 1945-1953. Accepted, .
  • KA Kaphingst (date unknown). Chen L-S, Kaphingst KA, Tseng T-S, Zhao S. How are lung cancer risk perceptions and cigarette smoking related? Testing an accuracy hypothesis. Translational Cancer Research 2016; 5(Suppl 5):S964-S971. Accepted, .
  • Wu YP, Aspinwall LG, Nagelhout E, Kohlmann W, Kaphingst KA, Homburger S, Perkins RD, Grossman D, Harding G, Cassidy P, Leachman SA (date unknown). Development of an Educational Program Integrating Concepts of Genetic Risk and Preventive Strategies for Children with a Family History of Melanoma. Journal of cancer education : the official journal of the American Association for Cancer Education. Accepted, .
  • Housten AJ, Furtado K, Kaphingst KA, Kebodeaux C, McBride T, Cusanno B, Politi MC (date unknown). Stakeholders' perceptions of ways to support decisions about health insurance marketplace enrollment: a qualitative study. BMC health services research. Vol. 16, 634. Accepted, .
  • Kaphingst KA, Ivanovich J, Elrick A, Dresser R, Matsen C, Goodman MS (date unknown). How, who, and when: preferences for delivery of genome sequencing results among women diagnosed with breast cancer at a young age. Molecular genetics & genomic medicine. Vol. 4, 684-695. Accepted, .
  • Banerjee SC, Sussman A, Schofield E, Guest DD, Dailey YS (date unknown). "Let's Talk about Skin Cancer": Examining Association between Family Communication about Skin Cancer, Perceived Risk, and Sun Protection Behaviors. Journal of health communication. Vol. 26, 576-585. Accepted, .
  • Griffey RT (date unknown). Griffey RT, Kennedy SK, D'Agostino McGowan L, Goodman MS, Kaphingst KA. Is low health literacy associated with increased emergency department utilization and recidivism? Academic Emergency Medicine 2014; 21(10):1109-1115. Accepted, .
  • Hudson DL (date unknown). Mental health and diabetes control among vulnerable primary care patients. American Journal of Accountable Care. Accepted, .
  • Kaphingst KA (date unknown). Drake B, Brown K, McGowan LD, Haslag-Minoff J, Kaphingst KA. Secondary consent to biospecimen use in a prostate cancer biorepository. BMC Research Notes 2016; 9:346. Accepted, .
  • Allen CG, McBride CM, Balcazar HG, Kaphingst KA (date unknown). Community Health Workers: An Untapped Resource to Promote Genomic Literacy. Journal of health communication. Vol. 21, 25-29. Accepted, .
  • Goodman MS, Griffey RT, Carpenter CR, Blanchard M, Kaphingst KA (date unknown). Do Subjective Measures Improve the Ability to Identify Limited Health Literacy in a Clinical Setting?. Journal of the American Board of Family Medicine : JABFM. Vol. 28, 584-94. Accepted, .
  • Kaphingst KA (date unknown). Kaphingst KA, Weaver NL, Wray RJ, Brown ML, Buskirk T, Kreuter MW. Effects of patient health literacy, patient engagement and a system-level health literacy attribute on patient-reported outcomes: a representative statewide survey. BMC Health Services Research 2014; 14:475. Accepted, .
  • Chavez-Yenter D, Zhao J, Ratcliff CL, Kehoe K (date unknown). Theory utilization in current communication of cancer genetic testing research: Identified gaps and opportunities. Social science & medicine (1982). Vol. 282, 114144. Accepted, .
  • Orom H (date unknown). Low health literacy and health information avoidance but not satisficing help explain don't know responses to questions assessing perceived risk. Medical Decision Making. Vol. 38(8), 1006-1017. Accepted, .
  • Chen X (date unknown). Health literacy and use and trust in health information. Journal of Health Communication. Vol. 23(8), 724-734. Accepted, .
  • Hay JL, (date unknown). Implementing an Internet-delivered skin cancer genetic testing intervention to improve sun protection behavior in a diverse population. JMIR Research Protocols. Vol. 6(4), e52. Accepted, .
  • Politi MC, Kuzemchak MD, Kaphingst KA, Perkins H, Liu J, Byrne MM (date unknown). Decision Aids Can Support Cancer Clinical Trials Decisions: Results of a Randomized Trial. The oncologist. Vol. 21, 1461-1470. Accepted, .
  • McVay MA, Steinberg DM, Askew S, Kaphingst KA, Bennett GG (date unknown). Genetic causal attributions for weight status and weight loss during a behavioral weight gain prevention intervention. Genetics in medicine : official journal of the American College of Medical Genetics. Accepted, .
  • Waters EA, McQueen A, Caburnay CA, Boyum S, Sanders Thompson VL, Kaphingst KA, Kreuter MW (date unknown). Perceptions of the US National Tobacco Quitline Among Adolescents and Adults: A Qualitative Study, 2012-2013. Preventing chronic disease. Vol. 12, E131. Accepted, .
  • Hay JL (date unknown). Psychosocial and cultural determinants of interest and uptake of skin cancer genetic testing in diverse primary care. Public Health Genomics. Vol. 22, 58-68. Accepted, .
  • McQueen A, Waters EA, Kaphingst KA, Caburnay CA, Sanders Thompson VL, Boyum S, Kreuter MW (date unknown). Examining Interpretations of Graphic Cigarette Warning Labels Among U.S. Youth and Adults. Journal of health communication. Vol. 21, 855-67. Accepted, .
  • Albright FS (date unknown). Population-based Relative Risks for Specific Family History Constellations of Breast Cancer. Cancer Causes & Control. Vol. 30, 581-590. Accepted, .
  • McBride CM (date unknown). Behavioral and social scientists’ reflections on genomics: a systematic evaluation within the Society of Behavioral Medicine. Translational Behavioral Medicine. Vol. 9, 1012-1019. Accepted, .
  • Zhao J (date unknown). Show Me Health Plans: dissemination of a web-based decision aid for health insurance plans. Journal of Medical Internet Research. Vol. 20(6), e209. Accepted, .
  • Hidalgo B, Kaphingst KA, Stafford J, Lachance C, Goodman MS (date unknown). Diagnostic accuracy of self-reported racial composition of residential neighborhood. Annals of epidemiology. Vol. 25, 597-604. Accepted, .
  • Thompson T (date unknown). Thompson T, Seo J, Griffith J, Baxter M, James A, Kaphingst KA. The context of collecting family health history: Examining definitions of family and family communication about health among African American women. Journal of Health Communication 2015; 20(4):416-423. Accepted, .
  • Kaphingst KA (date unknown). Kaphingst KA, Goodman MS, MacMillan WD, Carpenter CR, Griffey RT. Effect of cognitive dysfunction on the relationship between age and health literacy. Patient Education and Counseling 2014; 95:218-225. Accepted, .
  • Kaphingst KA, Khan E, White KM, Sussman A, Guest D, Schofield E, Dailey YT (date unknown). Effects of health literacy skills, educational attainment, and level of melanoma risk on responses to personalized genomic testing. Patient education and counseling. Vol. 104, 12-19. Accepted, .
  • Kaphingst KA, Blanchard M, Milam L, Pokharel M, Elrick A, Goodman MS (date unknown). Relationships Between Health Literacy and Genomics-Related Knowledge, Self-Efficacy, Perceived Importance, and Communication in a Medically Underserved Population. Journal of health communication. Vol. 21 Suppl 1, 58-68. Accepted, .
  • Politi MC, Kaphingst KA, Liu JE, Perkins H, Furtado K, Kreuter MW, Shacham E, McBride T (date unknown). A Randomized Trial Examining Three Strategies for Supporting Health Insurance Decisions among the Uninsured. Medical decision making : an international journal of the Society for Medical Decision Making. Accepted, .
  • Canary HE (date unknown). Family health history tools as communication resources: perspectives from Caucasian, Hispanic, and Pacific Islander families. Journal of Family Communication. Vol. 19, 126-143. Accepted, .
  • Bradshaw RL (date unknown). A standards-based clinical decision support platform for identifying population health management cohrots. Journal of the American Medical Informatics Association. Accepted, .
  • Khan E, Kaphingst KA, Meyer White K, Sussman A, Guest D, Schofield E, Dailey YT (date unknown). Comprehension of skin cancer genetic risk feedback in primary care patients. Journal of community genetics. Vol. 13, 113-119. Accepted, .
  • Klein WMP (date unknown). Optimal integration of behavioral medicine into clinical genetics and genomics. American Journal of Human Genetics. Vol. 104, 193-196. Accepted, .
  • Hay JL (date unknown). Interest and uptake of MCIR testing for melanoma risk in diverse primary care. JAMA Dermatology. Accepted, .
  • Kaphingst KA (date unknown). Preferences for learning different types of genome sequencing results among young breast cancer patients: role of psychological and clinical factors. Translational Behavioral Medicine. Vol. 8(1), 71-79. Accepted, .
  • Peterson E (date unknown). Communication of cancer-related genetic and genomic information: a landscape analysis of reviews. Translational Behavioral Medicine. Vol. 8(1), 59-70. Accepted, .
  • Elrick A, Ashida S, Ivanovich J, Lyons S, Biesecker BB, Goodman MS, Kaphingst KA (date unknown). Psychosocial and Clinical Factors Associated with Family Communication of Cancer Genetic Test Results among Women Diagnosed with Breast Cancer at a Young Age. Journal of genetic counseling. Vol. 26, 173-181. Accepted, .
  • Politi MC, Barker AR, Kaphingst KA, McBride T, Shacham E, Kebodeaux CS (date unknown). Show Me My Health Plans: a study protocol of a randomized trial testing a decision support tool for the federal health insurance marketplace in Missouri. BMC health services research. Vol. 16, 55. Accepted, .
  • Furtado KS, Kaphingst KA, Perkins H, Politi MC (date unknown). Health Insurance Information-Seeking Behaviors Among the Uninsured. Journal of health communication. Vol. 21, 148-58. Accepted, .
  • Kaphingst KA (date unknown). Hudson D, Blanchard M, Kaphingst KA, Goodman M. Estimates of mental health problems in a vulnerable population within a primary care setting. Journal of Healthcare for the Poor and Underserved 2016; 27(1):308-326. Accepted, .
  • Kaphingst KA, Ivanovich J, Biesecker BB, Dresser R, Seo J, Dressler LG, Goodfellow PJ, Goodman MS (date unknown). Preferences for return of incidental findings from genome sequencing among women diagnosed with breast cancer at a young age. Clinical genetics. Vol. 89, 378-84. Accepted, .
  • KA Kaphingst (date unknown). Politi MC, Barker AR, Kaphingst KA, McBride T, Shacham E, Kebodeaux CS. Show Me My Health Plans: a study protocol of a randomized trial testing a decision support tool for the federal health insurance marketplace in Missouri. BMC Health Services Research 2016; 16:55. Accepted, .
  • Kaphingst KA (date unknown). Kaphingst KA, Stafford JD, McGowan LD, Seo J, Lachance CR, Goodman MS. Effects of racial and ethnic group and health literacy on responses to genomic risk information in a medically underserved population. Health Psychology 2015; 34(2):101-110. Accepted, .
  • Carpenter CR (date unknown). Carpenter CR, Kaphingst KA, Goodman M, Lin MJ, Melson A, Griffey RT. Feasibility and diagnostic accuracy of brief health literacy and numeracy screening instruments in an urban emergency department. Academic Emergency Medicine 2014; 21:137-146. Accepted, .
  • Griffey RT (date unknown). Griffey RT, Melson AT, Lin MJ, Carpenter CR, Goodman MS, Kaphingst KA. Does numeracy correlate with measures of health literacy in the emergency department? Academic Emergency Medicine 2014; 21:147-153. Accepted, .
  • Matsen CB (date unknown). Decision role preferences for genome sequencing amongst young breast cancer patients. Patient Education and Counseling. Vol. 102(1), 155-161. Accepted, .
  • Kaphingst KA (date unknown). Cancer communication research in the era of genomics and precision medicine: a scoping review. Genetics in Medicine. Vol. 21, 1691-1698. Accepted, .
  • Young EL, Feng BJ, Stark AW, Damiola F, Durand G, Forey N, Francy TC, Gammon A, Kohlmann WK, Kaphingst KA, McKay-Chopin S, Nguyen-Dumont T, Oliver J, Paquette AM, Pertesi M, Robinot N, Rosenthal JS, Vallee M, Voegele C, Hopper JL, Southey MC, Andrulis IL,... (date unknown). Multigene testing of moderate-risk genes: be mindful of the missense. Journal of medical genetics. Accepted, .
  • Brown KM, Drake BF, Gehlert S, Wolf LE, DuBois J, Seo J, Woodward K, Perkins H, Goodman MS, Kaphingst KA (date unknown). Differences in preferences for models of consent for biobanks between Black and White women. Journal of community genetics. Vol. 7, 41-9. Accepted, .
  • Cortez S, Milbrandt M, Kaphingst K, James A, Colditz G (date unknown). The readability of online breast cancer risk assessment tools. Breast cancer research and treatment. Vol. 154, 191-9. Accepted, .
  • Fan JH, Lyons SA, Goodman MS, Blanchard MS, Kaphingst KA (date unknown). Relationship Between Health Literacy and Unintentional and Intentional Medication Nonadherence in Medically Underserved Patients With Type 2 Diabetes. The Diabetes educator. Accepted, .
  • Caburnay CA (date unknown). Caburnay CA, Babb P, Kaphingst KA, Roberts J, Rath S. Characteristics of genetics-related news content in Black weekly newspapers. Public Health Genomics 2014; 17(1):7-15. Accepted, .
  • Politi MC (date unknown). Politi MC, Kaphingst KA, Kreuter M, Shacham E, Lovell MC, McBride T. Knowledge of health insurance terminology and detail among the uninsured. Medical Care Research and Review 2014; 71(1):85-98. Accepted, .
  • Morgan T (date unknown). Morgan T, Schmidt J, Haakonsen C, Lewis J, Della Rocca M, Morrison S, Biesecker B, Kaphingst KA. Using the Internet to seek information about genetic and rare diseases: a case study comparing data from 2006 and 2011. JMIR Research Protocols 2014; 3(1):e10. Accepted, .
  • Murray MF (date unknown). A proposed approach for implementing genomics-based screening programs for healthy adults. National Academy of Medicine. Accepted, .