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Vice President of Research
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Professor, Obstetrics And Gynecology
Research Keywords
newborn screening
family communication
biobanking
Qualitative Research
Public Health
Genetics, Population
Genetic Screening
Focus Groups
Languages
Publications
- Rothwell, E., Johnson, E.P., Mathiesen, A., Golden, K.**, Metcalf, A.**, Rose, N., & Botkin, J. (2016). Experiences among Women with Positive Prenatal Expanded Carrier Screening Results screening, Journal of Genetic Counseling, epub Oct 29, DOI: 10.1007/s10897-016-0037-8.
Published, 12/05/2016.
- Rothwell, E., Kaul, S.**, Boyle, K.J., & Wong, B. (2016). Value of Genetic Incidental Finding Related to Cancer Causing Genes. American Journal of Cancer Prevention, American Journal of Cancer Prevention, 4(3), 44-50 DOI: 10.12691/ajcp-4-3-3.
Published, 11/01/2016.
- Botkin, J.R. Rothwell, E., Anderson, R.A, Rose, N.C., Dolan, S. M., Kuppermann, M., Goldenberg, A., Stark, L. & Wong, B. (2016). Prenatal education of parents about newborn screening and residual dried bloodspots. JAMA Pediatrics, 1: 170, 543-9, doi: 10.1001/jamapediatrics.2015.4850.
Published, 10/03/2016.
- Rothwell, E., Wong, B., Anderson, R., & Botkin, J. (2016). The influence of education on public trust and consent preferences with residual newborn screening dried blood spots. Journal of Empirical Research on Human Research Ethics, epub July 6, doi: 10.1177/1556264616656976.
Published, 10/03/2016.
- Higa, L.A.**, Himes, D.O., McDonald, J., & Rothwell, E. (2016). Life experiences of individuals with hereditary hemorrhagic telangiectasia and disclosing outside the family: A qualitative analysis. Journal of Community Genetics, 7(1), 81-9. doi: 10.1007/s12687-015-0254-0.
Published, 08/01/2016.
- Botkin, J.R. & Rothwell, E. (2016). Whole genome sequencing and newborn screening. Clinical Genetic Medicine Report, Mar 1;4(1):1-6.
Published, 08/01/2016.
- Rothwell, E. & Botkin, J.R. (2015). Ethical and regulatory issues with residual newborn screening dried bloodspots. Open Journal of Preventative Medicine, 5(10), 409-415.
Published, 12/2015.
- Goldenberg, A., Maschke, K., Joffe, S., Botkin, J.R., Rothwell, E., Anderson, R., Deming, N., Rosenthal, B.F., & Rivera, S.M. (2015). IRB practices and policies regarding the secondary research use of bio-specimens. BMC Ethics 16 (32). DOI: 10.1186/s12910-015-0020-1.
Published, 12/2015.
- Rivera, S.M., Goldenberg, A., Maschke, K., Rothwell, E. Rosenthal, B., & Aungst, H. (2015). Investigators experiences and attitudes about research with biospecimens. Journal of Empirical Research on Human Research Ethics, 10(5), 449-56. doi: 10.1177/1556264615610199.
Published, 12/2015.
- Collier, V., Carbone, P., Vanzo, R., & Rothwell, E. (2015). Volunteer Perspectives Regarding Adaptive Recreation Programs for Individuals with Autism Spectrum Disorder and Other Developmental Disabilities. Therapeutic Recreation Journal (in press).
Published, 08/2015.
- Rothwell, E., Maschke, K., Botkin, J.R., Goldenberg, A., Murray, T., & Rivera, S. (2015). Biobanking Research and Human Subjects Protections: Perspectives of IRB Leaders at CTSA Institutions. IRB: Ethics and Human Research, 37(2), 8-13.
Published, 08/2015.
- Martin, M., Rothwell, E., Venne, V.L., & Foster, N. (2015). Perceptions of tissue storage in a dementia population among spouses and offspring. Journal of Genetic Counseling, 24(3):503-11.doi: 10.1007/s10897-015-9818-8.
Published, 08/2015.
- Jez, S., Martin, M., South, S., Vanzo, R., & Rothwell, E. (2015). Variants of unknown significance on chromosomal microarray analysis: Parental perspectives. Journal of Community Genetics, 6(4), 343-9. doi: 10.1007/s12687-015-0218-4.
Published, 08/2015.
- Tarini, B., Finan, C., & Rothwell, E. (2015). Parents’ experiences communicating about positive cystic fibrosis newborn screening results. Pediatric Pulmonary, 54(1), 67-76.doi:10.1177/0009922814545619.
Published, 08/2015.
- Rothwell, E., Botkin, J. & Anderson, R. (2015). Deliberative Discussion Focus Groups. Qualitative Research Journal 2015 Jun 15. pii: 1049732315591150.
Published, 06/2015.
- Finan, C., Nasr, SZ, Rothwell, E. & Tarini, B. (2015). Primary care providers’ experiences notifying parents of cystic fibrosis newborn screening results. Clinical Pediatrics 54(1):67-75. doi: 10.1177/0009922814545619.
Published, 01/2015.
- Rothwell, E., Wong, B., Rose, N.C., Anderson, R., Fedor, E., Stark, L., & Botkin, J.R. (2014). A randomized controlled trial of an electronic informed consent process. Journal of Empirical Research on Human Research Ethics, 9(5), 1-7.
Published, 10/2014.
- Piatt, J., Bell, S., Wells, M.S., & Rothwell, E. (2014). Want Sport but Can’t Find a Team: The Lack of Opportunity for Adolescents with Physical Disabilities. Palestra, 28(4), 33-36.
Published, 09/2014.
- Bhimarao, C.N., Rothwell, E., Hart, K., Latimer, S., Schiffman, J.D., & Botkin, J.R. (2014). Attitudes of parents of children with serious health conditions regarding residual bloodspot use. Public Health Genomics, 17(3):141-8. doi: 10.1159/000360251.
Published, 08/2014.
- Botkin, J.R., Rothwell, E., Anderson, RA.A., Goldenberg, A., Kuppermann, M., Dolan, S.M., Rose, N.C., & Stark, L. (2014). What parents should know about the storage and use of residual newborn bloodspots. American Journal of Medical Genetics Part A, 164A(11), 2739-44.doi: 10.1002/ajmg.a.36694.
Published, 08/2014.
- Botkin, J., Goldenberg, A., Rothwell, E., Anderson, R., and Lewis, M. (2013). Policy guidance for the retention and research use of residual newborn screening bloodspots. Pediatrics (published online December 3, 2012). DOI: 10.1542/peds.2012-0852.
Accepted, 12/03/2013.
- Botkin, JR, Rothwell, E, Anderson, R., Stark, L., & Mitchell, J. (2013). Public Attitudes Regarding the Use of Electronic Health Information and Residual Clinical Tissues for Research, Journal of Community Genetic, ,5(3):205-13. doi: 10.1007/s12687-013-0175-8.
Published, 08/2013.
- Botkin, J., Goldenberg, A., Rothwell, E., Anderson, R., and Lewis, M. (2013). Policy guidance for the retention and research use of residual newborn screening bloodspots. Pediatrics, 131(1), 120-7. DOI: 10.1542/peds.2012-0852.
Published, 06/2013.
- Botkin JR, Anderson RA, & Rothwell E. (2012). Newborn Screening: Contemporary challenges to parens patriae Doctrine and use of public resources. In Health Care and Social Justice: Essays on the Distribution of Health Care. Silvers A, Battin P (Eds) Oxford University Press.
Published, 08/2012.
- Rothwell, E., Anderson, R., & Botkin, J. (2010). Research Policy Issues and Stakeholder Concerns REgarding the Storage and Use of Residual Newborn Dried Blood Samples for Reseach. Politics, Policy and Nursing Practices, 11(1), 5-12.
Published, 08/2010.
- Rothwell, E.W. (2010). Analyzing Focus Group Data: Content and Interaction. Journal for Specialists in Pediatric Nursing 25(3), 202-214.
Published, 2010.
- Christian, B., Pearce, P.F., Roberson, A.J., & Rothwell, E. (2009). It’s a small, small world: Data collection strategies for research with children and adolescents. Journal of Pediatric Nursing 25 (3), 202-214.
Published, 2009.
- Planalp, S., Crouch, B.I., Rothwell, E., & Ellington, L. (2009). Assessing the Need for Communication for Specialists in Poison Information Training. Journal of Clinical Toxicology, 47, 584-589.
Published, 2009.
- Rothwell, B. E., Piatt, J., & Mattingly, K. (2006). Social competence: Evaluation of an outpatient therapeutic recreation program for children with behavioral disorders. Therapeutic Recreation Journal 40 (4) 241-254.
Published, 2006.