Erin Rothwell is an Associate Professor in the College of Nursing and the Division of Medical Ethics and Humanities at the University of Utah. She is also a faculty member within the Graduate Program for Genetic Counseling and completed a fellowship in Bioethics from the Medical College of Wisconsin. Her program of research focuses on the ethical, social, and legal implications of participant comprehension and informed consent within newborn screening, prenatal testing and biobanking.
1R01 HD082148-01 Rothwell/Botkin (Co-PIs) 7/1/2015-6/30/2019
The Effect of Video Informed Consent Information on Residual Newborn Specimen Research
The purpose of this application is to 1) Identify the key information items necessary to make an informed decision about broad consent for the retention and future research use of residual DBS; 2) create a state-of-the-art electronic informed consent information (EICI) presentation for use in the clinical setting; 3) Evaluate the EICI consent approach by comparing it to traditional consent delivered on an electronic tablet and the current paper-based consent approach; and 4) Assess feasibility of the EICI through focus groups and interviews before and after the intervention.
1R21HD083832 Rothwell (PI) 4/1/2015-3/31/2017
Improved Prenatal Genetic Screening Decision Making through Game Technology
The purpose of this application is to 1) develop a prenatal screening gaming application prototype (PS-GAP) and 2) conduct a preliminary assessment of the PS-GAP on knowledge, satisfaction, and decisional conflict about prenatal genetic screening for pregnant women and their partners.